Member for Mayo, Rebekha Sharkie has continued her support for the recommendation to list the Cystic Fibrosis drug Orkambi on the Pharmaceutical Benefits Scheme, raising the issue during parliament Question Time.
After three attempts to have the drug recommended for listing were knocked back, the fourth appears to be more hopeful with Health Minister Greg Hunt giving promising answers to Ms Sharkies question regarding the drug.
Ms Sharkie said she was pleased to hear that the Minister himself had spoken to the company that supplies Orkambi and had directed his department to start the listing process.
“This drug has the potential to change the lives of so many older children with Cystic Fibrosis, including many young people in Mayo.”
While it may appear as the most promising attempt so far, Minister Hunt told Question Time that it took four months to list another Cystic Fibrosis drug, Kalydeco, on the PBS once it was recommended by the Advisory Committee.